Conventional genetic counseling does not help parents with these difficult decisions, according to an article in Genetic Testing and Molecular Biomarkers, a peer-reviewed journal from Mary Ann Liebert, Inc. The article is available free on the Genetic Testing and Molecular Biomarkers website.
“The article serves to remind genetic counselors of the need to fully inform patients of the meaning and significance to their test results,” says Kenneth I. Berns, MD, PhD, Editor-in-Chief of Genetic Testing and Molecular Biomarkers, and Director of the University of Florida’s Genetics Institute, College of Medicine, Gainesville, FL.
Authors McKane, Shariff, Tiffani, et al., from Georgetown University Medical Center (Washington, DC), Mount Sinai School of Medicine (New York, NY), and Dana-Farber Cancer Institute (Boston, MA) surveyed mothers tested for hereditary breast cancer risk genes, and their partners, about their motivations and needs in deciding whether to disclose the results to their children. The article, “Parenting Through Genetic Uncertainty: Themes in the Disclosure of Breast Cancer Risk Information To Children ,” discusses how parents have unmet needs for making well-informed decisions about family communication and propose that assistance should be offered to parents during genetic counseling.