Gail Adorno, assistant professor in the UT Arlington School of Social Work.
From anxiety about a cancer recurrence to physical problems such as chronic pain, survivors aren’t quite done battling the effects of cancer even 2, 5, and 10 years after treatment for the disease.
The study, “Current unmet needs of cancer survivors: Analysis of open-ended responses to the American Cancer Society Study of Cancer Survivors II,” is published online and in the February issue of Cancer, a journal of the American Cancer Society.
“So often, the expectation is that a cancer survivor should be grateful for having survived a diagnosis of cancer. And while this may be true, those survivors with debilitating, lingering effects of cancer and its treatment are not always acknowledged within healthcare systems as needing continued care based on their cancer survivor status,” said Gail Adorno, assistant professor in the UT Arlington School of Social Work and co-principal investigator on the study.
“Our findings suggest that cancer survivors do experience a variety of unmet needs from having had cancer and/or its treatment,” Adorno said.
To gauge the unmet needs of cancer survivors, researchers assessed responses from an American Cancer Society survey of 1,514 participants, age 18 years or older. The participants were randomly selected from population-based cancer registries in 14 different states and survivors of breast, prostate, colorectal, skin melanoma, bladder, or uterine cancer. They responded to the open-ended question: Please tell us about any needs you have now as a cancer survivor that are not being met to your satisfaction.
A six-person interdisciplinary team spent more than 200 hours analyzing the answers, coding them into 16 themes of responses. The themes ranged from financial unmet needs to personal control, including the inability to control urine and lack of sexual function.
Mary Ann Burg, professor of social work at the University of Central Florida and co-principal investigator, noted that improvements are needed concerning public awareness of cancer survivors’ problems, honest professional communication about the side effects of cancer, and the coordination of medical care resources to help survivors and their families cope with their lingering challenges.
The average number of unmet needs per survivor was 2.88, with breast cancer survivors identifying more unmet needs than other survivors in the study. Survivors most frequently expressed physical problems, with 38 percent saying they were an issue.
Personal control — such as the ability to plan and make decisions with regard to one’s own health care, talking about one’s cancer to employers or others, or the ability to move as desired — was one of the dominant themes in the responses, having not been previously identified in the literature on unmet needs.
The average number of needs declined with age, but did not differ consequentially by gender. However, significantly more men than women identified with the themes of physical needs and personal control needs.
Additional investigators on the study include: Cara Wallace from The University of Texas at Arlington; Ellen D.S. Lopez and Dinghy Kristine B. Sharma from the University of Alaska Fairbanks; Victoria Loerzel from the University of Central Florida College of Nursing; and Kevin Stein from the American Cancer Society.
About the UT Arlington School of Social Work
The University of Texas at Arlington School of Social Work is nationally and internationally recognized for its expertise in social work and social welfare and had been equipping students with the education and skills to transform society through service since 1967. With more than 1,800 students enrolled in its academic programs, the School of Social Work offers three main academic programs: the Bachelor of Social Work, Master of Social Work and Ph.D. in Social Work. Visit www.uta.edu/ssw to learn more.
About UT Arlington
The University of Texas at Arlington is a comprehensive research institution of more than 48,000 students around the world and the second largest institution in The University of Texas System. The Chronicle of Higher Education ranked UT Arlington as the seventh fastest-growing public research university in 2013. U.S. News & World Report ranks UT Arlington fifth in the nation for undergraduate diversity. Visit www.uta.edu to learn more, and find UT Arlington rankings and recognition at www.uta.edu/uta/about/rankings.php.
The University of Texas at Arlington is an Equal Opportunity and Affirmative Action employer.
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