Moffitt researchers and collaborators interviewed 33 Latina breast cancer patients either during focus group sessions or in-depth interviews. The majority of the women were born outside of the United States and 45 percent of participants stated that Spanish was their only language. The team also interviewed 10 cancer care providers and advocates to assess their opinions about Latina cancer care and compare their responses to patient responses. Sixty percent of the health care providers/advocates self-identified as Hispanic and were bilingual.
The cancer patients and care providers had some of the same opinions about the key problems facing Latina cancer patients. They agreed that there is a lack of information for the Latina community about cancer and its treatment that can cause confusion and stress among patients when combined with communication barriers.
The researchers discovered several other issues that were important factors leading to stress for cancer patients that were not mentioned by their providers. Many described family-related issues as important stress-inducers during cancer treatment, including fear of not being able to provide and care for their families, not wanting to be a burden to their family and being far away from their native country and their families.
Despite these stress inducers, 64 percent of the cancer patients stated that they had not received any type of stress management tools or information during their chemotherapy, though 95 percent of the patients believed that a stress management toolkit would have been helpful.
The researchers then asked the participants how they managed the stress associated with cancer. Latina patients and their providers stated that prayer, reading the bible and spirituality helped reduce stress. Spending time with family and trying to maintain a normal day-to-day routine was also given as a stress reducing option by both sets of participants. Techniques that were only mentioned by the cancer patients included exercise, reading educational material, listening to music, staying positive, watching TV and deep breathing exercises.
Researchers emphasized that educational material for Latina cancer patients should be developed in their native language and written by writers who are familiar with their culture. It is important to consider regional variations within Latino communities throughout the United States, be inclusive of Latina families and be cognizant of the attitudes, beliefs and obligations of Latinas to their families. Physicians and care providers must also be aware of the ongoing stresses associated with cancer treatment and the support systems that Latinas turn to in order to reduce stress.
About Moffitt Cancer Center
Located in Tampa, Moffitt is one of only 41 National Cancer Institute-designated Comprehensive Cancer Centers, a distinction that recognizes Moffitt’s excellence in research, its contributions to clinical trials, prevention and cancer control. Moffitt is the top-ranked cancer hospital in the Southeast and has been listed in U.S. News & World Report as one of the “Best Hospitals” for cancer care since 1999. With more than 4,500 employees, Moffitt has an economic impact in Florida of nearly $1.6 billion. For more information, visit MOFFITT.org, and follow the Moffitt momentum on Facebook, Twitter and YouTube.