06:01am Monday 13 July 2020

Helping children and young people with type 1 diabetes to help themselves

The study `Evidence into practice: evaluating a child-centred intervention for diabetes medicine management’, now commonly known as EPIC (Evidence into Practice: Information Counts) will ask children and young people with type 1 diabetes about their preferences when it comes to information and the decisions they make about how to look after themselves. The team is led by Professors Anne Williams and Jane Noyes.

Deborah Edwards, the Research Officer for EPIC at Cardiff School of Nursing and Midwifery Studies said: “The team is specifically looking to talk with children and young children with type 1 diabetes who live away from their families for short, medium or long periods of time – such as whilst attending summer and sports camps, boarding schools, those living with foster families, on work/education placements or courses, on holiday with friends, or those living at youth offender institutions.

 “We would be very happy to hear from parents/guardians, and children/young people between the ages of 6 and 18 years who have looked after their type 1 diabetes whilst spending some time away from their families to help us”.

Dr Lesley Lowes, Senior Lecturer/Paediatric Diabetes Specialist Nurse, who is a co-investigator on the project said: “Children with type 1 diabetes require specialist information, and how this information is presented and used depends very much on the age of the child and where they are living on a day to day basis, so there is a need for an age-appropriate information resource that has been developed with the help of children and young people.”

The project is funded by the National Institute of Health Research Service Delivery and Organisation (NIHR-SDO) programme and will be undertaken in several sites across England and Wales.

If you are interested in helping the EPIC project, please contact Deborah Edwards on 079 8977 6278 or [email protected]. Further information is available at: www.epicproject.info.



Notes to editors:

1. For further information or to request an interview, please contact:

Deborah Edwards

EPIC Research Officer

School of Nursing and Midwifery Studies

Cardiff University

Tel: 079 8977 6278

Email: [email protected]


Jessica Kelly

Public Relations Office

Cardiff University

Tel: 029 2087 0298

Email: [email protected]  


2. Cardiff School of Nursing and Midwifery Studies

Cardiff School of Nursing and Midwifery Studies pursues the highest standards of learning and teaching through research, education and clinical practice.

Teaching at the School has been assessed as ‘excellent’ by government appointed panels and teaching methods are developed and updated to ensure that graduates are well-equipped to respond effectively to meet the challenges of clinical practice in the 21st Century. Students undertake clinical placements which are structured to maximise the link between clinical and theoretical outcomes.

The School undertakes theoretically informed and empirically rigorous research which stands at the forefront of nursing and midwifery policy debates at international, national and local levels. Collaboration is an important element of research activity with work often undertaken in partnership with communities and healthcare professionals. The main areas of staff expertise include work and organisation, health knowledge, long-term conditions, children and young people, genetics, mental health, patient safety and health technologies.

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