VIDEO ALERT: Additional audio and video resources, including excerpts from an interview with Dr. Gloria Petersen describing the research, are available on the Mayo Clinic News Blog.
“Substantial debate surrounds the question of whether researchers have an ethical obligation to return individual research results to genetic relatives of patients, especially when the patient has died, and incidental findings have potential health or reproductive importance for kin,” says Dr. Petersen, the Purvis and Roberta Tabor Professor at Mayo Clinic. “Establishing best practices for navigating this issue is becoming increasingly important as bio banks all over the world are archiving genetic data and making those data available for secondary analyses, often years after the DNA was donated.”
The study will examine family preferences, produce a detailed analysis of the legal and ethical issues involved, and offer recommendations for best practices.
Other Mayo Clinic study team members include Noralane Lindor, M.D., Robert McWilliams, M.D., Wesley Petersen, Ph.D., Carmen Radecki Breitkopf, Ph.D., and Ashley VanDenboom.
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