Older people, including those with early stage dementia, often continue to enjoy a sexual relationship in their own homes, but once they move into residential care, lawful and consensual sexual expression is frequently frowned upon, according to researchers from ACEBAC.
Lack of privacy, safety fears, concerns about duty of care, anxieties about potential repercussions from relatives, and ageism all get in the way of what is, according to Dr Tarzia, a basic human right and a normal and healthy part of ageing
‘Since it has been well established that sexuality and intimacy continue to be important in later life and are central to an individual’s health and wellbeing, the lack of attention paid by aged care facilities to residents’ sexual needs is concerning.
‘The existing research indicates that residents do want their sexual expression to be acknowledged and believe that healthcare professionals should ask them about their sexual needs,’ says Dr Tanzia.
But many residential facilities lack formal policies or guidelines or appropriately trained staff to address this, the research contends, and they are not helped by existing frameworks for assessing mental capacity and consent, which apply primarily to high stake decisions, such as treatment and power of attorney.
There are some frameworks to assess decision-making capacity around sex, say the authors, but they are unsuitable. A person may perform badly on a mini mental state test—used to assess cognitive impairment—but is often still able to express a preference for a friend or lover.
The authors acknowledge that it is important to protect the vulnerable from harm and to ensure that sexual behaviour is not harmful, abusive or illegal, but that should not prevent people with dementia from making their own decisions about sex.
They may indeed be exposed to emotional distress if a relationship ends, according to the study.
‘However, these are risks that any sexually active person faces throughout his or her life, and we should not confuse a bad or unwise decision with incompetence.
‘Seeking to “protect” individuals with dementia by not allowing them to express their sexual needs, thereby stifling their autonomy and personhood, is a far greater failure of duty of care. It is also, we would argue, a violation of the fundamental right of a person with dementia to be recognised as a person before the law.
‘These issues are likely to become more relevant and pressing as the population ages and more and more residential care homes will be needed,’ says Dr Tanzia.
‘At present, rather than engaging with the delicate balancing act between resident autonomy and duty of care [residential care homes] are choosing to ignore the issues and tread on the side of caution.’
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