But seven per cent of all newborns in the United Kingdom are premature. So when the unexpected happens, and first-time mothers deliver a premature baby, their expectations fly out of the window. Very often, these mothers have not had time to attend NCT classes and are cut off from other mothers’ networks. Instead, they are visiting a fragile baby in intensive care and wondering how, and if, life will ever become ‘normal’ again. In hospital, there is much support for mother and child; but when the mothers take their baby home they encounter new challenges and stresses. The psychological impact of exposing a premature baby to a crowded bus, a busy supermarket or even a park can be traumatic.
To develop an understanding of these issues, Dr Silvia Gullino, senior lecturer in Spatial Planning at Kingston, is working with King’s College London and Guy’s and St Thomas’ Foundation Trust to examine how mothers of premature babies experience urban/community life once their babies have been discharged from a neonatal intensive care unit (NICU).
“In the unit mothers feel protected and it is difficult for them to appreciate the impact of the environment outside the hospital once they are caring for their discharged baby,” Silvia said. “All their ideas about breastfeeding cafes, buggies and outings might go out the window. For example, the baby might have oxygen support and the mother would need to take an oxygen cylinder when they went out of the home. How do you manage that in a challenging environment like London?”
The project marks a departure for Silvia from her original work in sustainable urban regeneration and was prompted by personal experience. After discussions with medical staff about health care and spaces, she put forward a research proposal for some cross-cutting medical and social research which has now received funding (£15,800) from the Department of Perinatal Imaging and Health at King’s College London.
The project will follow 10 first-time mothers in Lambeth and Southwark for four months after their preterm babies are discharged from St Thomas’ Hospital. They will be asked to keep a diary using a simple web app, or printed calendar, to log their activities outside home each day and how they feel about them. The aim is to identify how the mothers experience public transport, parks, streets etc and what the constraints are; to map those places where they feel vulnerable; and to see how they adapt places to make their own safe places. The project team will also monitor 10 first-time mothers with term babies who suffered no complications, to provide points of comparison.
“I am expecting to hear how the first-time mothers with preterm babies negotiate the environment” said Silvia.” For example, that they walk rather than use the bus or tube; whether they attend playgroups; or choose parks that appear more suitable for vulnerable babies.
“This work should offer a different understanding of the urban environment and hopefully inform planning policies in the boroughs. For instance, maybe a park works better because of its design, a reassuring cafe or a quiet garden. It is all about well being and what might be preventing a child from getting the best start in life.”
Silvia is the project’s chief investigator. She will be working with Professor David Edwards at King’s College London; and, from Guy’s and St Thomas’ Hospital Foundation Trust, with consultant neonatologists Dr Anthony Kaiser and Dr Hammad Khan (who developed the web app), and Aisling Phillips, sister and manager of the neonatal outreach team.
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