VJ Periyakoil, MD, Eric Neri, and Helena Kraemer, PhD, Stanford University School of Medicine and VA Palo Alto Health Care System, Palo Alto, CA, describe five additional barriers: doctor behaviors, a communication chasm between doctors and patients, family behaviors and beliefs, healthcare system barriers, and cultural and religious barriers. Older women from all ethnic groups were most likely to report challenges in receiving quality EOL care for persons within their communities.
In the article “Patient-Reported Barriers to Quality End-of-Life Care: A Multiethnic, Multilingual, Mixed-Methods Study,” the researchers emphasize the urgent need for education, training, and support to improve end-of-life care among diverse patient populations. It is also very important for patients to identify their proxy decision makers and work with them to ensure that the proxies understand their values and are willing to be guided by them when making future decisions for the patient.
“These results challenge the conventional wisdom that ethnic minority populations don’t want good EOL care,” says Charles F. von Gunten, MD, PhD, Editor-in-Chief of Journal of Palliative Medicine and Clinical Professor of Medicine, Ohio University.
Journal of Palliative Medicine is the official journal of the Center to Advance Palliative Care (CAPC) and an official journal of the Hospice and Palliative Nurses Association.
About the Journal
Journal of Palliative Medicine, published monthly in print and online, is an interdisciplinary journal that reports on the clinical, educational, legal, and ethical aspects of care for seriously ill and dying patients. The Journal includes coverage of the latest developments in drug and non-drug treatments for patients with life-threatening diseases including cancer, AIDS, cardiac disease, pulmonary, neurological, and respiratory conditions, and other diseases. The Journal reports on the development of palliative care programs around the United States and the world and on innovations in palliative care education. Tables of content and a sample issue can be viewed on the Journal of Palliative Medicine website.
About the Publisher
Mary Ann Liebert, Inc., publishers is a privately held, fully integrated media company known for establishing authoritative peer-reviewed journals in many promising areas of science and biomedical research, including Population Health Management, AIDS Patient Care and STDs, and Briefings in Palliative, Hospice, and Pain Medicine & Management, a weekly e-News Alert. Its biotechnology trade magazine, Genetic Engineering & Biotechnology News (GEN), was the first in its field and is today the industry’s most widely read publication worldwide. A complete list of the firm’s 80 journals, books, and newsmagazines is available on the Mary Ann Liebert, Inc., publishers website.