James Carrington-Howell had been treated at the former Walsgrave Hospital for seven years for haemophilia B, a rare bleeding disorder which only affects 1,500 people in the UK*.
Sadly in November 2000, when James was just 18, he was involved in a car accident in which himself and four of his friends Adam, Alex, Craig and Johnathon died.
The parents of all the five boys set up a fund and James’ family decided to give their share to Ward 34 at University Hospital which treats patients for blood disorders including haemophilia.
James’ parents Digby and Patricia Carrington-Howell and his brother Sebastian donated a “Chester Chest” teaching dummy which helps parents learn how to give infusions at home in order to allow younger patients to have more of a normal life and prevent them having to come into hospital unnecessarily. It will also be used for teaching purposes for staff.
They also gave a donated a picture painted by James’ grandfather, John Howell of five young men walking along a beach, representing the five boys who died in the car crash. This will go in the bay in the day unit on Ward 34.
Oliver Chapman, consultant haematologist said: “Being able to give patients hands on experience can be difficult and having this sort of equipment is fantastic.
“Initially some of our patients need to come in to hospital for treatment three times a week – this equipment will help them to learn to self administer this at home instead, which will be of great benefit both to the patients and their families.”
Kathryn Marshall, Clinical Nurse Specialist, said: “This is going to be used for many years and the great thing is that we will be able to use it to tailor it for staff training and patient training.
“It is a very generous donation and we are extremely grateful to Dr and Mrs Carrington-Howell for their kind gift.”
Dr and Mrs Carrington-Howell, of Nuneaton, said: “We decided to give to the Ward 34 haematology because of the work they do.
“James had been treated by the staff here and Sebastian still comes to see them so we know it’s a good department.
“It is our hope that our donations will be a comfort to patients using the day unit and help parents of young patients become more confident in giving transfusions.”
NOTES TO EDITORS
* (From The Haemophilia Society website):
|von Willebrand’s Disease||9,242|
|TOTAL in UK with any bleeding disorder||22,855|
Figures from the UKHCDO March 2011
Picture Caption (L-R): Nas Khan Paediatric Clinical Nurse Specialist for Haemophilia, Patricia Carrington-Howell, Oliver Chapman, Digby Carrington-Howell, Sebastian Carrington-Howell, Kathryn Marshall.
University Hospitals Coventry and Warwickshire NHS Trust